All entries for Monday 07 March 2011
March 07, 2011
Once again I must protest that I’m not keen on blogging about my actual life but after the first of these posts it turned out a friend had made it to this stage too, so maybe it’s more common than I first thought. I dunno, it’s never been the topic of any polite dinner party conversation I’ve been part of to talk about marrow donation, although I’ve been to about two polite dinner parties in my life (once by mistake) so it could be common.
Do not lose sight of the importance of this link – http://www.anthonynolan.org/
2006, a few weeks later
I’m scared of donating blood. Yes, I know this is about the other donation, the one with the HUGE needles, and I know donating blood involves small needles. I have no issue with needles. I wasn’t the kid in my secondary school who reacted to their BCG jab by turning green and passing out. I used to watch the injections as they went into my arm, fascinated by the vanishing liquid. No, it’s not the mechanics of blood donation which bother me.
No one knows what causes migraines for sure. Like all migraine sufferers I know roughly what triggers them, but how extreme stress or not-so-extreme food deprivation translate into blindness, splitting headaches and projectile vomiting is a mystery. All a doctor has ever been able to say to me is that it might be related to chemical levels in the blood.
So far, despite my massive clumsiness I’ve never lost a significant amount of blood in any incident. Even the time I sliced my thumb in half (yes, I am an idiot, I know this) it wasn’t a bloody as it could have been. Well, it didn’t cause my blood-phobic housemate to pass out, so it can’t have been too bad. It wasn’t Ichi The Killer levels. The upshot of this rambling is to say that I’ve never donated blood because I’m worried it might set off migraines. It’s irrational, it probably won’t, but I don’t know. Perhaps once I’ve given marrow I should make it a target to give blood within six months to prove it. Who knows.
The aftermath of my thumb slicing incident. Blood all cleaned (except the stuff we couldn’t clean so we put furniture over it so the landlord wouldn’t notice.
But my other worry is I don’t have enough blood. And this is where I find myself back in the summer of 2006.
When people need bone marrow donations their family is screened first. It makes sense, you’re more likely to find a match with close relatives than random strangers* like us names bobbling around on the Anthony Nolan register. But sometimes it doesn’t work out and then it’s pot luck. To the register. To sign up we gave small pots of blood, not enough to run more than a couple of tests. So when a person in need of a transplant comes to the register they tend to test a few partially matching people more closely to find the best match.
It had been only a few months since I had left the students’ union after signing up. I’d already put it to the back of my mind and can you blame me? I was a white female. They didn’t need white females, they’d said so. Had there been any men or any non-white people I would have been sent away. I’d have gone home to Leamington and wondered why I still had no feeling in my thumb (the sliced in half one, the feeling still isn’t more than 40% today, five years later). I’d have watched TV, done my essay, eaten. I wouldn’t have been one of the four people on the register that were a rough match to an ill person somewhere in Britain.
I laughed when I found out I was a partial match. “They said I wasn’t needed!” I told blood-phobic housemate, “And here I am, a partial match”. It was a one in four chance I might be the best match, which are good odds if you’re betting on horses and bad odds if you’re betting on football (yeah, I worked in a bookies for a while).
Like these but twelve of them.
To find the best match involves tests. Tests require blood. I was sent a box of twelve small pots, like the first small pot from signing up day. Only this time there was twelve of them. I took my box of goodies to the doctor’s clinic to be filled and the nurse laid them out. They had different coloured tops. They looked like pieces from a strange boardgame which only served to make it even more surreal as the nurse put a needle in my arm and filled them one by one until all were fu… no, wait. The last three or so weren’t full. We couldn’t fill them. She prodded my arm once or twice but for the last three (look away squeamish folk) my blood merely dripped in, rather than leaping forward with enthusiastic abandon as it had done initially. The nurse smiled and assured me it was normal, and maybe it was. Maybe twelve pots is a lot to ask. But my irrational side was in its element, “Look! You can’t possibly donate blood, you don’t have enough for yourself! How could someone as pale as you possibly have enough blood”. I am very pale it’s true. Even other Irish people think I’m pale. I tried to ignore the irrational voice, especially as the nice, rational nurse said it was quite normal not to fill all twelve pots.
My blood was posted to London to be prodded and probed. I didn’t have a migraine. I didn’t feel any change at all, which at least reassured me that no one was performing any voodoo on my platelets which was nice of them. So I went back to work. It was summer and time to work my arse off because that’s the lot of many students these days. Work work work whilst they bleed you dry. At least I’d been bled (slightly) dry for a slightly better cause.
And now it was time to wait and see who was the best match…
*Reading about family matches and donations I found the fascinating case of Karen Keegan, an American who needed a kidney transplant. When her children were tested to see if they were matches the results said they weren’t even her children. It turned out she’s a chimera, one person with two sets of DNA made when two fraternal twins fuse in the womb to grow as one person. Her womb and her blood were produced from different embryos but lived in one body. Biology is interesting.